December 2012
I had been traveling for the entire month of November and had not seen Joe in around five weeks. That night in early December I was out of town, around three and a half hours away by car. I received a call from my wife. Joe’s conservator wanted me to call her. Something was wrong with Joe. Paramedics had been called.
I called the conservator immediately. She told me that oxygen levels in Joe’s blood were dangerously low and he was having trouble breathing. He had to go to the hospital, but he didn’t want to go, and was being obstinate. She was afraid that he would refuse to go with the paramedics and she asked me to try to persuade him to cooperate. I agreed to try.
A young caregiver at the facility answered my call. Her voice was unsteady and fragile. She tried to hide it, but I knew she was worried. She made her way to Joe’s room, speaking with me as pleasantly as she could while she walked.
“Joe, your brother is on the phone,” she said. “He wants to talk to you.”
Grumpy mumbling and shuffling stirred in the background. Joe was saying something, but I could not make it out.
“You don’t want to talk right now?” the attendant asked.
I heard more grumbling, and then a sharp reply in a garbled, dismissive voice:
“I don’t want to talk to him. I don’t feel well,” Joe said.
“He says that he doesn’t want to talk,” she said loudly into the phone like a faithful child not knowing what to do.
I replied without thinking, “Tell him that Donnie loves him,”
“Donnie loves you,” she said with a lingering hope in her voice.
The wrestling in the background calmed down. There were a few more seconds of muffled mumbling. Finally, the attendant spoke into the phone with an almost-calm resolve.
“He doesn’t want to talk right now,” she said.
I could see Joe sitting on the edge of the bed barely able to breath. He wanted to be left alone. No one in this world could make him feel better. Only God, his friends, his home, could give him comfort.
Was it the onset of a heart attack? A stroke? Were decades of chain smoking and years of sedentary living about to exact their final toll?
As I did years before after Joe’s accident, I distracted myself for as long as I could. Then I sat alone in the dark and wept. I went to bed praying that my brother would survive the night. I pray far more now than I did fifteen years ago, or even two years ago. Did my brother teach me how to pray?
The next morning I rushed home. Joe had been put into intensive care. No heart attack. No stroke. The early stages of pneumonia, the doctor said, were exacerbated by his COPD. He was put on antibiotics, oxygen and inhalers. I was allowed to visit, as long as I did not disturb his rest. I peeked into his room from the hallway. Joe was sleeping with his back exposed toward the door. I silently inched my way into the room and sat down in a chair next to his bed. I watched Joe’s heartbeat skipping wildly on the monitor at a high rate above 100. I listened to his sluggish breath and the slurps of fluid in his chest.
He lay still. Every breath was strained. Where would he find the strength to survive pneumonia?
I sat in the chair. I did not talk to Joe. I did not see his face. He was turned away from me. After an hour or so, I went home.
Did he know I was there? Did he want me to be?
I returned to the hospital the next day. Joe was still sleeping. His breathing had not improved much. But the doctor said he was stable. I resumed my place. Finally Joe rolled over and noticed me. He managed a weak smile,
“Hello Donnie,” he said in a subdued voice. He did not have the strength to talk. After a few moments, he again turned his back to me and slept. I stayed in Joe’s room and tried to work on my laptop, but I had little success. My eyes were drawn to the monitors and my ears to his heavy, watery breath. Joe’s face was sunken and exhausted, but I could not detect the slightest concern for himself. His vital signs, the diagnosis, the treatments, his chances of survival meant nothing to him. He slept soundly like a trusting child.
I visited Joe everyday for the next few days. He got progressively better. He wanted to know when he could go home. The only other matter of concern for him, besides his friends and God, which he kept to himself, was ice cream—the hospital promised ice cream whenever he wanted it—and he was not afraid to ask.
Then, one afternoon I studied him hobbling on his bad leg as he moved back and forth from the bathroom. He suddenly looked fine, almost like his former self. Then, the nurse told me he was ready to go home. I was astounded. Do they just want to get rid of him?
I had one last conversation with the doctor. The pneumonia diagnosis had been premature, he said. But what had caused the acute shortness of breath and lack of oxygen, the fluid in his lungs? It was just the COPD and his smoking.
Fourteen years prior I was told Joe would never walk again. I wept for him, his loss of freedom, his suffering. But he is free. He walks, and he does not acknowledge his suffering. Now, I was told he had pneumonia. I wept again in fear that I might lose him. But Joe sheds no tears. He walks again, fearlessly, this time away from a brush with death. This is the life of my brother, streaming with an inscrutable, healing grace.
That was not enough to calm my anxiety. Something had to be done about his smoking. The rationing of cigarettes, now years old, was not up to the task. As he was being discharged, I rushed back to Joe’s room. I did not have the authority to take anything from him, but I did it anyway—I collected all the cigarettes I could find and made off with them. My plan was to replace them with electronic cigarettes. Joe arrived in a van just as I was coming out of the facility with cigarettes in hand.
He was furious. For the first time in over fifteen years he raised his voice to me,
“Donnie, give me those cigarettes! Give me those cigarettes!”
“I am going to get you some better cigarettes Joe,” I said.
“The cigarettes you have there are just fine,” he insisted.
I gave Joe one pack, and assured him that he would get them all back little by little, and some better cigarettes to boot.
He endured a near suffocating death without complaint. If asked, I doubt he would say that he suffered. Only I had made him suffer by depriving him of these instruments of death, the only privation that mattered to him.
But in his outrage he did not curse me or dismiss me. After a few moments he accepted my concern for him and surrendered to forgiveness.
The struggle over tobacco and nicotine-laced water vapor continues to this day.
Before my trip in November I was seeing Joe just about every Sunday. That was not the norm just a few months prior. His stint in the hospital seemed to transform our routine into a Sunday ritual. I only notice it now. I did not one day decide that I would visit Joe every Sunday. I just did it.
Gradually, with weekly lunch outings, the ways in which Joe and I interacted changed. Joe no longer quickly withdraws into his world popping up occasionally for a question or comment. He asks me how I am doing. He wants to know about my work, what I am teaching, what keeps me busy. He turns to me and I am obliged to turn to him. I have told him what I teach: critical thinking, humanities and ethics. He asks me about each subject, what it is. I try to explain as best I can. Then he asks questions earnestly attempting to comprehend.
“Is the humanities like the Ying and the Yang and the Alpha and the Omega?” he asks. Together we try to make sense of the question. “Yes,” I finally admit. “The humanities do have to do with the Yin and Yang, the Alpha and the Omega.” In our clumsy dialogue, that might appear senseless to an observer, Joe never attempts to impose himself on me. Every question arises from a concern for me and for what I do. And, when Joe feels he has understood something, he offers suggestions to help.
I told him that we were developing a new degree program for our college.
“You know Donnie,” he said, “every student should know how to build a house. Every student should be able to build a house. That should be in your program”
I agreed that that would be a very good thing to know how to do.
Joe has begun to request that I turn off the radio on our drives. I could not have imagined Joe asking such a thing a few months ago. Music has become the exception and not the rule. He prefers lunch, talk and a drive.
But it is difficult to talk to Joe. I do not think he has had anyone to talk to in earnest for decades, except God and friends, who are forever with him. His primary frame of reference is the world prior to his breakdown in the 1970s when he worked as a salesman of prefabricated homes in San Jose, California. He wants to talk about the economy and home building and he can be quite coherent as he remembers experiences some forty years old—sometimes I feel like he has emerged from a time machine. I have tried to explain so many things, the global marketplace, the rise of China, the expansion of the stock market, and the Internet.
I don’t know how much he comprehends and remembers, but all memory is clothed in a loving glaze in search of ways to help, and all new knowledge is accepted with humble wonder.
“Is that right? Is that right?” He says with a grin.
God is never far from any conversation, and may make an appearance at any time,
“You know, Donnie,” Joe says assuredly, “I know God.”
The advice and sayings from God are many. Some come to the surface only once. Others are repeated.
Joe told me while pointing at a rather unattractive digger pine by the side of the road:
“God said: “That tree is the stillness of my oasis in space.””
And that is not all God has told Joe about trees. Joe has shared many times,
“See that tree there,” he says, “God takes water from ground and draws it all the to the top, and that is the way the tree lives.”
And a recent treasure: Joe belted out a laugh and grinned from ear to ear. Then he said,
“God told me that the earth is the front end of a construction project for heaven.”
It seems as if our new routines have been in place for years. But that is not true. Joe has changed a little, at least in his preferences. My transformation has been profound—yet it lacks dedicated intention, overtaking me without notice.
I used to move quickly in and out of the residences where Joe stayed, including this one. I would never bother to learn the names of those living with him.
I now know James, a large jolly fellow who almost always manages a wave and a big smile whenever I pass by. I know Martha, a woman of quiet dignity and gentle voice. And John, a thin, gaunt fellow who sits erect as a stone and speaks very little. I notice what I have ignored in the past. I remember the man in the wheelchair who did not talk. His mouth agape, his eyes closed. I notice that I do not see him anymore.
Facing my brother these past months has brought me closer to the faces he lives with. How can I not open my eyes and follow where love leads? But where does love lead? And how far am I able to go?
THE FACE OF JOE
Oh, my dear brother, the afternoons are many
That I have seen you
Face to Face.
Kind lines on your forehead, cheeks and chin
Illumine Hope.
Shining in your smirks and smiles
In whispers,
Visible in the gleam of your eyes,
Wonders of life with God
Carried on divine winds
From you
To me
To this page.
“What would it take,” you ask,
“For me to put this menu together all by myself?”
And you do not turn your face from me.
“What kind of farm would it take to produce all the food on this menu?”
You bring me closer.
“This coffee, this salt, everything.
These are businessmen doing a good job,” you say.
“This is brotherly love.”
In coffee
In pepper and salt
In delicate flavors of spice
In textures and colors
In supporting beams
In the rock of a hearth
Where you prefer to take your meal.
You see Love
Where I would not think to look.
Love in our food.
Love in the trees and the clouds.
Love in the dry, yellow grasslands of our home
Love between us.
Gazing at your face
I begin to comprehend
As my budding soul
Sparks some resemblance.
Love veiled in poverty
Uttering riddles
At appointed times.
Precious fragments from your limitless world
Through the cogent boundaries of mine,
Ignite meaning
Issuing likeness divine.
Do I finally see you?
Has love lifted the veil from your face?
“I live with God,” you say.
Has God been born in me through you?
Distance impassable
Between your life
And mine.
Between your face
And my wanting heart.
Suspicion in reason
Fails sweetness of trust.
Strength in capacity
Betrays meekness of deprivation.
Pride in knowledge
Denies the certainty of heaven.
Confidence immovable
Ignores offers of help.
Like a rose pressed against the heart
That is allowed to fall
Sense renders nonsense of love.
Do not surrender hope
And the promise of heaven,
I imagine you say,
When it is free.
Open to me and wipe the dew from my face,
Consecrate your heart to Love
Wherein salvation is assured
For all.
I remain on the phone
Hearing but not seeing,
Love passed to you
From another.
I wait for you and worry
Your face turned from me.
Resurrected you draw near
Show yourself
And I listen.
Well-springs of God,
Hidden oases,
Treasures in the stillness of space
Utterly simple,
Traversing limits of knowledge,
Boundless by design
Heavenly dreams
Of a trusting child
Pass to fallen man
With a single request:
Build heaven on earth.
Love is the beginning,
Love is the end,
Spiraling in cycles of growth
The Alpha and the Omega
The Yin and the Yang
Arriving where I began
Hope cradles me anew
Waiting for Sunday sun.
“Good to see you Joe,” I say.
“Good to see you Donnie,” you reply
“You look good Joe.”
“Well, thank you Donnie. Thank you,”
“Donnie, I have known you your whole life, and it’s always good to see you.”
POSTSCRIPT
I reminisce sometimes, going over photos of Joe, watching little videos of him, or going through some of his belongings–he did not have many. But we do have a large stuffed giraffe that adorned his altar sitting in our front room before the fireplace. These things bring on memories that I enjoy. But I miss him. And I feel some emptiness. I do not have a sense that I am close to Joe as he is now. I feel left in the dark, praying, reaching for something I cannot comprehend.